Living Well With Gastrostomy

Module 03

In this module, parents talk about their experiences with gastrostomy and ways they have found to make things easier in everyday life.

Perth Children's Hospital
Telethon Kids Institute

Each video has an associated Ask and Do sheet you can use on-line or download.

You are encouraged to think about who you can ask to help you work through these tasks. It is helpful to include someone close who may be helping with your child’s care.

Remember to discuss any special concerns you have for your child with your child’s health care team.

Father and child

01. Early Days After Hospital

Emma with Imogen

Emma shares her experiences caring for older daughter Nina.

In this video Emma shares her feelings about when she first came home from hospital with Nina after the gastrostomy had been inserted.

02. Preparing to feed:

Emma Feeding at Home

In this video parent Emma shows you the steps she takes when preparing to feed using the gastrostomy tube and pump. Remember that every child is different and will have different routines.

03. Feeding step by step:

Emma & Nina Feeding at Home

In this video, Emma shows you the steps she takes when feeding using the gastrostomy tube and pump and a low-profile device at home. Remember that every child is different and will have different routines.

04. Prepare and give medicine:

Emma & Nina at Home

In this video, Emma shows you how she prepares and gives medicine using the gastrostomy tube. Remember that every child is different and will have different routines.

This video is useful if you need to use the gastrostomy to give your child medication.

05. Learning by doing:

Emma & Peter

In this video, Emma & Peter share how they learnt to feed their child Nina with a gastrostomy tube at home.

06. Equipment and supplies at home:

Jodie

In this video, Jodie shares her tips and ideas. She shows you how she stores her feeding tools and supplies.

07. Helpful gadgets:

Jodie

In this video, Jodie shows some gadgets that she has found to be useful.

08. Family helping at mealtime:

Laura

In this video, Laura shares how each of her children take on small roles to help when she is feeding her daughter Charlotte. Charlotte is fed using a continuous feed. Remember that every family is different and will have different routines.

09. Being prepared for outings:

Laura

In this video Laura shares how she gets ready to go out with her daughter Charlotte.

10. Feeding when going out:

Emma and Peter

In this video, Emma and Peter share how they felt about feeding when in public places in the early days following their daughter’s gastrostomy. They take their daughter anywhere they want to go. They make sure they have all the feeding supplies they need with them.